Model for personalized diagnostics and treatment in neurology-German Academy for Rare Neurological Diseases

Abstract

The German Academy for Rare Neurological Diseases (DASNE) founded in 2017 on the Wartburg in Eisenach, aims to pave the way for an optimized personalized management of patients in all age groups with rare neurological diseases. By bringing rare neurological disease experts together and through forming adynamic national network the DASNE, initiated by the Centers for Rare Diseases in Lübeck and Tübingen, will continuously foster mutual exchange. Members of the DASNE are renowned experts covering the whole spectrum of rare neurological disorders including pediatric neurology. Through case presentations and multidisciplinary discussion both at yearly meetings and on an internet platform, the main aims of DASNE are to establish aGerman expertise and reference network for rare neurological disorders. Further main aims are to provide continuous medical education for younger academics in the field of rare neurological disorders and facilitate translation.