Abstract

Objective: The aim of this paper is to describe the process of developing web information on miscarriage based on scientific evidence, for women and couples in Sweden experiencing miscarriage. Method: A participatory design was used which included researchers, professional experts and users. A participatory design was used involving researchers, professional experts and users. The information was developed in six stages: 1) identifying the needs of information; 2) identifying and constructing the main areas of information and its paths; 3) identifying and inviting experts for revision; 4) developing the text; 5) reviewing the text; 6) design and structuring for adaption to website. Results: The text of information developed gradually based on the seven steps. The final text comprised three parts: 1) what is miscarriage; 2) experiences of miscarriage; 3) processing and planning for new pregnancy. Conclusion: Using participatory design was time and resource consuming, however it was functional for producing appropriate information for the target group. The developed evidence based facts text is assumed to be a complement to the information that is provided by the health care system.

Highlights

  • Becoming a mother is a process that starts early in a girl’s/woman’s life and which becomes more concrete when there is a decision to plan for a baby [1]-[4]

  • The aim of this paper is to describe the process of developing evidence-based factual text about miscarriage for afflicted women and couples to be used in a web page application

  • There is information available about miscarriage in the healthcare guide and on 1177.se but it is possible that all couples seeking this information do not come to access it

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Summary

Introduction

Becoming a mother is a process that starts early in a girl’s/woman’s life and which becomes more concrete when there is a decision to plan for a baby [1]-[4]. When a positive pregnancy test is a fact it is mostly a concrete start for a couples’ emotional preparation and planning for an extended family with child. Miscarriage, defined as a spontaneously terminated before the gestational week twenty-two [5] and of which some occur so early that the woman never realized that she was pregnant, is a fact in as many as one of five pregnancies [6]-[9]. When the pregnant woman/the prospective parents realize that the pregnancy is no longer viable they have an emotional reaction if different severity, as blockage and emptiness [2], anxiety, depression and grief [10]-[13]. Some women having experienced miscarriage can blame themselves for causing the miscarriage [2]

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