Abstract
BackgroundGiven the complex and evolving needs of individuals with multimorbidity, the adoption of mHealth tools to support self-management efforts is increasingly being explored, particularly in primary care settings. The electronic patient-reported outcomes (ePRO) tool was codeveloped with patients and providers in an interdisciplinary primary care team in Toronto, Canada, to help facilitate self-management in community-dwelling adults with multiple chronic conditions.ObjectiveThe objective of study is to explore the experience and expectations of patients with multimorbidity and their providers around the use of the ePRO tool in supporting self-management efforts.MethodsWe conducted a 4-week pilot study of the ePRO tool. Patients’ and providers’ experiences and expectations were explored through focus groups that were conducted at the end of the study. In addition, thematic analyses were used to assess the shared and contrasting perspectives of patients and providers on the role of the ePRO tool in facilitating self-management. Coded data were then mapped onto the Individual and Family Self-Management Theory using the framework method.ResultsIn this pilot study, 12 patients and 6 providers participated. Both patients and providers emphasized the need for a more explicit recognition of self-management context, including greater customizability of content to better adapt to the complexity and fluidity of self-management in this particular patient population. Patients and providers highlighted gaps in the extent to which the tool enables self-management processes, including how limited progress toward self-management goals and the absence of direct provider engagement through the ePRO tool inhibited patients from meeting their self-management goals. Providers highlighted proximal outcomes based on their experience of the tool and specifically, they indicated that the tool offered valuable insights into the broader patient context, which helps to inform the self-management approach and activities they recommend to patients, whereas patients recognized the tool’s potential in helping to improve access to different providers in a team-based primary care setting.ConclusionsThis study identifies a more explicit recognition of the contextual factors that influence patients’ ability to self-manage and greater adaptability to accommodate patient complexity and provider workflow as next steps in refining the ePRO tool to better support self-management efforts in primary care ahead of its application in a full-scale randomized pragmatic trial.
Highlights
Individuals with multimorbidity often require personalized, multifaceted self-management support to facilitate the acquisition of varying and evolving patient-centered goals [1,2,3,4,5,6,7,8]
To build on the results obtained from the usability pilot, this paper aims to examine patient and provider views and experiences pertaining to the use of the electronic patient-reported outcomes (ePRO) tool to better understand how the tool supports self-management among patients with multimorbidity
This study was based on a secondary analysis of data from a usability pilot of the ePRO tool and sought to assess the user experience of the tool in supporting self-management for patients with multimorbidity in an interdisciplinary primary care team
Summary
Individuals with multimorbidity often require personalized, multifaceted self-management support to facilitate the acquisition of varying and evolving patient-centered goals [1,2,3,4,5,6,7,8]. Providers in primary care settings have indicated that conflicting symptom profiles, uncertainty around treatment regimens, and the absence of guidelines around managing patients with multiple chronic conditions affects their ability to effectively support self-management in adults with multimorbidity [12]. This is further complicated by a number of challenges, including the compound effects of different conditions and medications, emotional strain, and diminished motivation that patients’ may experience as they try to manage competing health conditions and issues of social complexity such as low-income status and limited health literacy [13,14]. The electronic patient-reported outcomes (ePRO) tool was codeveloped with patients and providers in an interdisciplinary primary care team in Toronto, Canada, to help facilitate self-management in community-dwelling adults with multiple chronic conditions
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