Abstract
Introduction: at this critical moment of the COVID -19 pandemic, we observe the social withdrawal and the break from the routine of individuals in society, for people with disabilities who need adequate support and a routine of more intense and effective activities may feel a greater need for care and attention of family support for solving everyday problems. Objective: to identify factors associated with the impact of the pandemic on the quality of life of individuals with disabilities and their caregivers. Methods: a virtual survey was carried out with parents and caregivers of people with disabilities to identify the main factors associated with the impact of the Pandemic on daily life and social relationships between family and community. Results: of the parents and caregivers we had access to and answered the questionnaire, 90% are residents of the ABC region of São Paulo. Their children and adolescents with disabilities are between 4 and 18 years old. The main scores of caregivers on difficulties in care during the pandemic, 70% felt helpless at some point, 17% had difficulties in performing self-care activities, 42% had anguish and fear during the period, 83% have the greatest responsibility for household decisions, and about 50% can share those decisions. Conclusion: the main complaints about the care of people with disabilities during the COVID-19 pandemic are related to the feeling of fear and anguish that affects decision-making and family relationships, which influences self-care activities and mental health of this population.
Highlights
At the end of 2019, we witnessed an event that the world has not faced for a long time, a new scenario motivated by the pandemic of a hitherto unknown microorganism
This family of viruses was first isolated in early 1931; the coronavirus in question was the infectious bronchitis virus (IBV) and caused an acute and extremely contagious respiratory infection in birds[2], already the first infection in people resulting from a coronavirus was identified in 1965 promoted by various strains of coronavirus and in almost 100% of cases involved upper airway infection[2]
Translated and adapted for the Brazilian[13] instrument encompasses generic data about the quality of life, its 36 items distributed in domains such as functional capacity related to the performance of daily activities (DA)[12]
Summary
At the end of 2019, we witnessed an event that the world has not faced for a long time, a new scenario motivated by the pandemic of a hitherto unknown microorganism. Coronavirus, named for thestructural conformation that gives it a coronal appearance belongs to a large family of positive single-stranded RNA viruses that parasitize and cause disease in mammals and birds, usually this class of virus, when it infects animals, it rarely affects humans[1] This family of viruses was first isolated in early 1931; the coronavirus in question was the infectious bronchitis virus (IBV) and caused an acute and extremely contagious respiratory infection in birds[2], already the first infection in people resulting from a coronavirus was identified in 1965 promoted by various strains of coronavirus and in almost 100% of cases involved upper airway infection[2]. Other waves happened in the same country, at the Amoy Gardens housing complex, on Air China’s flight from Hong Kong to Beijing, or at the Metropole Hotel, being the agent of the spread to Canada, Vietnam, and Singapore, resulting in hundreds of other confirmed cases of the disease[3]
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