Men’s Lived Experiences with Breast Cancer: The Double Consciousness of Marginal Men

Abstract

The present study investigated men’s experiences with their breast cancer diagnosis and post-mastectomy lives. It is based on the sociological tradition of investigating the “marginal man” who lives in two not merely different but incompatible cultures (e.g., the pink ribbon culture of breast cancer and the everyday ideals of masculinity and the male body). Seventeen mature and aging U.S. men who all lived with a breast cancer diagnosis and treatment, including a mastectomy, were interviewed. The principle finding reveals that they saw themselves as men and remain seen by others in terms of their gender, not their atypical illness. Two meta-themes underlying men’s breast cancer stories were identified: body talk and embodiment of their breast. Each of these themes had subthemes. Noticeable was how the historical era when diagnosed and men’s aging experiences influenced their illness journey and stories. For all, even the recently diagnosed, their journey was a lonely one. No man had known another man with breast cancer to consult. Only a few men felt their breast cancer was a stigma, and they too did not feel emasculated. Instead, in the process of embodying their breast cancer, they amended their identities and practiced softer, hybrid forms of masculinities.