Abstract
AbstractBackground: Quality of dying and death receive far less attention than quality of life. Measuring the quality of care at end-of-life (EOL) in long-term care (LTC) is essential, to ensure high standards.Methods: A questionnaire measuring Staff Perception of their patient’s End of Life Experience (SPELE) was developed. Content Validity (CVI) was assessed by a panel of experts and piloting was conducted with dyads of healthcare assistants (n=15) and nurses (n=15).Results: The SPELE captures facets of the quality of the death and dying experience from healthcare staff’s perspective. Good group inter-rater reliability was observed among subscales. One exception was the pain and symptom experience scale. Kappa values showed little agreement between nurses and healthcare assistants for certain symptoms, including pain.Conclusion: Further testing of the questionnaire is underway in a large multi-centre randomised control trial in Ireland. To date the tool is described as a useful mechanism to enable researchers and clinicians to explore quality of care at EOL.
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