Abstract

Objective: To test two methods of providing low cost information on the later health status of survivors of neonatal intensive care.Design: Cluster randomised comparison.Setting: Nine hospitals distributed across two UK...

Highlights

  • The speciality of neonatal intensive care has developed over the past 30 years. This period has seen a rapid growth in provision of care and dramatic improvements in the survival of premature infants.[1]. These developments have been accompanied by concern that the falling mortality may have been achieved at the cost of high rates of disability in survivors

  • Information on late morbidity in survivors of neonatal intensive care is needed by several groups of people: by parents, so that they can understand the possible consequences of survival in their baby and take informed decisions about their child’s care; by the clinical team, for sharing with parents, for evaluating their service, and for research; by commissioners of neonatal care and other services for children, so that they can make informed decisions and plans; and by the general public, so that they can take part in an informed debate on priorities in health care

  • We carried out a pragmatic cluster randomised controlled trial to compare two approaches to the collection and collation of information on preterm infants who had required neonatal intensive care and had survived to 2 years of age

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Summary

Introduction

The speciality of neonatal intensive care has developed over the past 30 years. This period has seen a rapid growth in provision of care and dramatic improvements in the survival of premature infants.[1]. There is broad agreement on the data that should be collected and on the features of systems to collect such data.[6] Such systems should be simple, standardised between units, based on existing data collection systems (and be capable of being implemented at little additional expenditure), and capable of achieving high levels of ascertainment.[6] We carried out a pragmatic cluster randomised controlled trial to compare two approaches to the collection and collation of information on preterm infants who had required neonatal intensive care and had survived to 2 years of age. The other method relied on collation and review of clinical information collected as part of routine service delivery

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