Abstract
Two conceptually different approaches towards an operational deenition of Quality of Life (QoL) have been proposed so far in the literature: the so-called ‘health-related QoL’, exemplieed by measures such as the sickness impact proele (SIP) or the SF-36, and the individual QoL, exemplieed by the schedule for the evaluation of individual quality of life-direct weighting (SEIQoL-DW). 1 The former consists of questionnaires which aim to assess the impact of the disease process on the functional and psychological status of the patient. The latter uses patient-generated cues to assess the patient-perceived QoL, whereby the choice of QoL-relevant domains and their weighting is left entirely to the patient and can vary from one assessment to the next. Not surprisingly, a recent randomized study showed that patients strongly favoured the SEIQoL-DW over the SIP and the SF-36. 2
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Schedule a callMore From: Amyotrophic lateral sclerosis and other motor neuron disorders : official publication of the World Federation of Neurology, Research Group on Motor Neuron Diseases
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