Abstract
BackgroundCapability well-being captures well-being based on people’s ability to do the things they value in life. So far, no capability well-being measures have been validated in dermatological patients.ObjectivesTo validate the adult version of the ICEpop CAPability measure (ICECAP-A) in patients with dermatological conditions. We aimed to test floor and ceiling effects, structural, convergent and known-group validity, and measurement invariance.MethodsIn 2020, an online, cross-sectional survey was carried out in Hungary. Respondents with self-reported physician-diagnosed dermatological conditions completed the ICECAP-A, Satisfaction with Life Scale (SWLS), WHO-5 Well-Being Index and two dermatology-specific measures, Dermatology Life Quality Index (DLQI) and Skindex-16.Results618 respondents (mean age 51 years) self-reported a physician-diagnosed dermatological condition, with warts, eczema, onychomycosis, acne and psoriasis being the most common. ICECAP-A performed well with no floor and mild ceiling effects. The violation of local independence assumption was found between the attributes of ‘attachment’ and ‘enjoyment’. ICECAP-A index scores correlated strongly with SWLS and WHO-5 (rs = 0.597–0.644) and weakly with DLQI and Skindex-16 (rs = − 0.233 to − 0.292). ICECAP-A was able to distinguish between subsets of patients defined by education and income level, marital, employment and health status. Multigroup confirmatory factor analysis indicated measurement invariance across most of these subgroups.ConclusionsThis is the first study to validate a capability well-being measure in patients with dermatological conditions. The ICECAP-A was found to be a valid tool to assess capability well-being in dermatological patients. Future work is recommended to test measurement properties of ICECAP-A in chronic inflammatory skin conditions.
Highlights
Dermatological conditions are estimated to contribute to approximately 2% to the global burden of disease expressed in disability-adjusted life years, with dermatitis, including atopic, contact and seborrheic dermatitis, acne vulgaris
14 different capability-based well-being questionnaires have been developed for use in healthcare, such as the ICEpop CAPability Measure (ICECAP), Adult Social Care Outcome Toolkit (ASCOT) and Oxford Capability questionnaire-Mental Health (OxCAP-MH) [12, 13]
ICECAP-A is a measure of capability well-being consisting of the following five attributes: stability, attachment, autonomy, achievement and enjoyment [25]
Summary
Dermatological conditions are estimated to contribute to approximately 2% to the global burden of disease expressed in disability-adjusted life years, with dermatitis, including atopic, contact and seborrheic dermatitis, acne vulgaris,1 3 Vol.:(0123456789)Quality of Life Research autonomy, personal growth, life satisfaction, happiness and purpose in life [6, 7].HRQoL measures may not be able to capture the wellbeing burden of living with a dermatological disease. These questionnaires have been gaining increasing interest, especially because they may expand the evaluative space in health economic evaluations by allowing to value non-health attributes [12, 13] In some countries, such as the UK and the Netherlands, health technology assessment bodies recommend the inclusion of capability outcomes in the assessment of health interventions and programmes where the intended benefits from interventions are associated with non-health-related effects (e.g. social or long-term care) [14, 15]. Objectives To validate the adult version of the ICEpop CAPability measure (ICECAP-A) in patients with dermatological conditions. Respondents with self-reported physiciandiagnosed dermatological conditions completed the ICECAP-A, Satisfaction with Life Scale (SWLS), WHO-5 Well-Being Index and two dermatology-specific measures, Dermatology Life Quality Index (DLQI) and Skindex-16. Future work is recommended to test measurement properties of ICECAP-A in chronic inflammatory skin conditions
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