Measurement of social connection in people with dementia living in care homes

Abstract

AbstractBackgroundSocial connection is a fundamental human need. For those living in long‐term care (LTC) settings, social connection influences quality of life and care. However, social connection has not been clearly conceptualized, nor is it routinely measured, in LTC. LTC residents have complex health needs, and are separated from previous social networks while residing in communal care environments, so measurement instruments need to be tailored and tested in these settings. Currently, there is no evidence‐based consensus on the best approaches to defining or measuring social connection in LTC homes. In this project, funded by an Alzheimer’s Association/Brain Canada Advancing Research on Care and Outcome Measurement grant, we aim to systematically describe all previous of social connection measures in LTC residents and evaluate their psychometric properties.MethodsWe searched eight databases until November 18th, 2021. We used the COnsensus‐based Standards for the selection of health Measurement INstruments (COSMIN) filter to identify studies reporting instrument measurement properties. We included primary studies reporting ≥1 psychometric property (including validity, reliability, internal consistency, responsiveness) of a measure of social connection (including social engagement/ support/ networks/ isolation, loneliness, and other related constructs), tested among LTC residents. Two reviewers will independently screen titles and abstracts and then conduct full text review.To assess measure form and content, we will describe the measures and their target settings, and conduct a thematic content analysis on all items. To evaluate psychometric properties, we will assess each measure using the COSMIN risk of bias checklist and summarize the evidence for the nine measurement properties. We will rate the measure overall using a Grading of Recommendations Assessment, Development, and Evaluation approach.ResultsAfter removing duplicates, our search yielded 5945 studies. We excluded 5818 studies after screening titles and abstracts, leaving 127 papers for full text review.ConclusionsWe will present results of this ongoing systematic review on content and psychometric properties of social connection measures in LTC residents. Through this presentation, we will elicit feedback from stakeholders on our findings to date. This feedback will inform our development of a new measure to assess social connection in people living in LTC homes.