Managing symptoms associated with the redundant distal colon and rectum: a pilot scoping exercise

Abstract

Background: During stoma formation, the redundant distal colon and rectum (RDCR) is often left in situ. This is associated with symptoms that can be problematic and difficult to manage. Aims: This questionnaire aimed to determine patient experience of RDCR-associated symptoms, their impact and how they are managed. Methods: Data were collected from a self-selecting convenience sample at an information event using a mixed-methods questionnaire, before being collated in a spreadsheet for framework analysis. Results: The questionnaire was completed by 19 patients. The severity of symptoms' impact varied widely. Common problems included rectal leakage, odour and sore skin, as well as psychosocial symptoms like anxiety and depression. Some patients had undergone investigations. Management usually involved bearing down over the toilet, as well as Glycerin, Microlax and phosphate suppositories and enemas. Conclusions: This small pilot study highlighted the variation in symptoms and their severity in RDCR. Further research into this population is required to inform management strategies and develop a care pathway.