Male infants and infants born small for gestational age are at risk of fine motor delay in infancy

Abstract

introducing the RISQ to the department. Notes were sampled until 50 RISQ forms were retrieved for each sample. Results: The level of uptake was 100% (n= 46: 25 and 21 patients for each sample). 84.7% of the combined sampled notes had the RISQ at their first appointment with 98.2% present at follow-up appointments (relating to 22 patients). At their first appointments, patients identified an impact on 65.4% of the domains, with missing data (MD) for 7.7%. 38.1% of the domains had written comments with 51.3% patients describing a question or concern (MD=25.6%). Expectations of treatment were described by 71.8% of patients. At follow-up, the level of completion for the impact across the four domains was 97.7% with 73.6% identified as affected and 25.5% having written comments. On-going or new questions/concerns were identified on 27.3% of the follow-up forms, with written questions or concerns about treatment on 7.4% of forms. There was 99.3% compliance for completion of all of the numerical rating scales. Conclusion(s): This notes audit indicated better uptake for the RISQ at follow-up appointments than first, with high levels of completion. Findings from this audit (and concurrent focus groups) resulted in changes to wording of the RISQ and strategies for distribution prior to therapy. For comparison, thesemethods are currently being applied to evaluate engagement in two sites naive to the RISQ. Future research could focus on exploration of the psychometric properties of the RISQ and its role for influencing patient care and outcomes. Implications: The RISQ, a patient-centred questionnaire inviting written comments, previously demonstrated user acceptability: this pragmatic service-evaluation demonstrates high levels of patient engagement. Web-based articles and training videos, and further research (with publication and conference presentations) will need to be undertaken to encourage further uptake and determine its value in clinical practice.