Abstract

Spasticity is common in long-term care settings (affecting up to one in three residents), yet it remains under-treated despite safe and effective, Food and Drug Administration (FDA)-approved therapies. One barrier to treatment may be lack of awareness of available therapies for long-term care residents living with spasticity. A standardized spasticity treatment awareness and interest interview was conducted with 18 nursing home residents and 11 veterans’ home residents in this cross-sectional study. Veterans’ home residents were also asked about potential barriers to receiving spasticity treatment. Many residents across both long-term care facilities were unaware of most of the treatment options for spasticity. Participants were most aware of physical/occupational therapy (83%, 95% CI: 65–93%) and least aware of intrathecal baclofen (21%, 95% CI: 9–39%). After learning about treatments, only 7% of participants (95% CI: 0–23%) were not interested in receiving any form of spasticity treatment. Among residents previously unaware of spasticity treatments, at least one quarter became interested in receiving treatment and at least one-fifth indicated possibly being interested in the treatment after learning about it. Potential barriers to receiving treatment included traveling to see a doctor and limited knowledge of insurance coverage of spasticity treatments. These results suggest that patient-centered approaches, including education and discerning patient preferences, may improve spasticity treatment in long-term care settings.

Highlights

  • Spasticity affects up to one-third of residents in long-term care settings but remains largely undiagnosed and undertreated [1,2,3,4]

  • There are a variety of treatments available for spasticity, it remains under-treated in long-term care settings [1,2,3,4,12]

  • These results indicate that a large percent of residents with spasticity from two different long-term care settings are unaware of most of the available spasticity treatment options and that many are interested in the treatments once informed about them

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Summary

Introduction

Spasticity affects up to one-third of residents in long-term care settings but remains largely undiagnosed and undertreated [1,2,3,4]. This velocity-dependent increase in stretch reflex associated with muscle hypertonicity arises following disease or injury to the central nervous system (e.g., stroke). Safe and efficacious treatments for spasticity include physical/occupational therapy, medications, and surgery. These treatments can enhance quality of life by improving care delivery and restoring ADL function [10,11]. One barrier to long-term care residents receiving spasticity treatment may be their lack of awareness of the range of available treatment options and their associated safety and efficacy profiles

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