Long Distance Caregiving: An Evaluative Review of the Literature

Abstract

A comprehensive and evaluative review of empirical research published between 2000 and 2010 specific to long distance caregiving is provided to identify what is known about this subgroup of caregivers and to identify gaps in knowledge. We searched peer-reviewed journals included in the following databases: Academic Search Premier (EBSCO), PROQuest Direct, Social Work Abstracts, CINAHL, MEDLINE, and PsychInfo. Searches were restricted to English language publications between 2000 and 2010. Search terms included: ‘review + caregiving + dementia’, ‘meta-analyses + caregiving + dementia,’ ‘caregiving + dementia + not institutional,’ ‘informal + caregiving,’ ‘family + caregiving’, ‘caregiving + technology’. Any searches including the term ‘dementia’ were repeated without that term. These same searches were repeated with the term ‘distance’ added to each. Empirical research specific to long distance caregiving is reviewed in detail. A brief review is provided of other closely related research. Long distance caregivers report being heavily involved in the care of their family member, regardless of distance and surprisingly, are often the only or primary caregiver. The specific needs for future research to inform best practice that goes beyond description of this important subgroup of caregivers is discussed.