Living with inflammatory bowel disease: a modified photovoice study of adolescent mental health

Abstract

Background: Inflammatory bowel disease (IBD; Crohn's disease, ulcerative colitis) is a chronic condition involving inflammation of the gastrointestinal tract. Adolescents with IBD are 4.6 times more likely to experience depression and anxiety than healthy peers. Aims: The primary purpose of this research was to understand the lived experiences of adolescents diagnosed with IBD. Methods: Adolescents aged 16–18 years were recruited to complete an online survey, followed by a photovoice component that included the collection of images and participation in an interview. Results: Thematic analysis revealed six key themes: the importance of social support networks in managing the challenges of IBD, the positive impact of maintaining a positive outlook on life, strategies for taking control of and coping with the impact of IBD, the interplay between physical pain and the psychological toll of the disease, the various limitations imposed by IBD on daily life and the challenges posed by others' lack of awareness and understanding of the condition. Conclusions: Adolescents with IBD experience disease-related factors that impact their wellbeing. Attention to these factors from nurses, doctors, caregivers and peers can help optimise their mental health and wellbeing.