"Little things matter!" Exploring the perspectives of patients with dementia about the hospital environment.

Abstract

BackgroundRecognising demographic changes and importance of the environment in influencing the care experience of patients with dementia, there is a need for developing the knowledge base to improve hospital environments. Involving patients in the development of the hospital environment can be a way to create more responsive services. To date, few studies have involved the direct voice of patients with dementia about their experiences of the hospital environment.Design and methodUsing an action research approach, we worked with patients with dementia and a team of interdisciplinary staff on a medical unit to improve dementia care. The insights provided by patients with dementia in the early phase shaped actions undertaken at the later stage to develop person‐centred care within a medical ward. We used methods including go‐along interviews, video recording and participant observation to enable rich data generation.AimThis study explores the perspectives of patients with dementia about the hospital environment.ResultsThe participants indicated that a supportive hospital environment would need to be a place of enabling independence, a place of safety, a place of supporting social interactions and a place of respect.ConclusionsPatient participants persuasively articulated the supportive and unsupportive elements in the environment that affected their well‐being and care experiences. They provided useful insights and pointed out practical solutions for improvement. Action research offers patients not only opportunities to voice their opinion, but also possibilities to contribute to hospital service development.Implications for practiceThis is the first study that demonstrates the possibility of using go‐along interviews and videoing with patients with dementia staying in a hospital for environmental redesign.Researchers, hospital leaders and designers should further explore strategies to best support the involvement of patients with dementia in design and redesign of hospital environments.