Abstract
ABSTRACTPurpose:This is a gap in knowledge related to leisure behaviours among mothers who have children with autistic spectrum disorder (ASD). This study intended to understand leisure behaviours associated with leisure constraints among these mother caregivers. Method: Using a series of semi- structured interviews, a total of 12 participants engaged in this study. Results: Our findings consisted of two sections: (1) leisure negotiation and (2) leisure constraints which are (a) a lack of time for themselves, (b) constant attention, and (c) difficulty in finding a helper. Conclusions: This study found that participants modified their leisure patterns as they sought to provide more recreational opportunities for their children. It suggests that participants negotiated their leisure choices and developed family adaptability related to family leisure in order to suit the desires and needs of their child with ASD.
Highlights
According to American Association of Retired Persons (AARP, 2015), there are approximately 37 million adults in the U.S.A. who regularly provide unpaid care for a relative or a family member
Parent caregivers are a group of individuals who are committed to providing physical, emotional, and social support for their children with special healthcare needs to an extent that often exceeds what would typically be expected of parents
Based on patterns in participants’ life experiences and personal statements as they emerged through data analysis, findings were categorized into two sections: (1) leisure pattern, and (2) leisure constraints
Summary
According to American Association of Retired Persons (AARP, 2015), there are approximately 37 million adults in the U.S.A. who regularly provide unpaid care for a relative or a family member. Parent caregivers are a group of individuals who are committed to providing physical, emotional, and social support for their children with special healthcare needs to an extent that often exceeds what would typically be expected of parents. These parents retain primary responsibility for providing basic needs such as protection and nutrition. Prior studies have suggested that parent caregivers often accommodate their children’s needs by limiting their own personal life opportunities They focus more on their children rather than on themselves (Abbeduto et al, 2004; Weiss, 2002). These parents are likely to exhibit psychological stress and experience lower levels of perceived well-being and quality of life
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