Abstract
Purpose: Owing to the time-consuming job of caring for their child's family and friends, parents of children with autism spectrum disorder risk losing family relationships. The main aim was to identify and intervene in the quality of life of parents, the interventions offered to parents as primary caregivers of children with ASD. To explore parents' perspectives on beneficent for children with autism in connection with formative years, resources, and to confront the consequences of upraising a child with ASD. Design/Methodology/Approach: Systematic literature, resulting in the publication of 27 studies that focused on the living standards of parents of children with ASD. Systematic literature scrutiny was performed using the search words "autism spectrum disorder," ‘primary caregiver/ parents/ mother” and "Quality of life" in the electronic databases Research gate, Academia, Google Scholar, and PsycInfo. Findings/Result: QOL autism-specific assessment tools were limited and hence, most studies have employed a general measure tool to assess the influence of the diagnosed disorder on the physical and psychological well-being of parents/caregivers. Originality/Value: The sequel of this study advocate that to date, the appraisal of quality life in parents of children with ASD into clinical practice has been rationalized by the shortage of autism-specific scales. As generically do not catch all pertinent aspects of living with ASD raising the need for immediate measures. Implementing parental interventions in parallel with the child’s interventions may raise QOL. Paper Type: Systematic literature review.
Highlights
It's worth noting that autism spectrum disorder (ASD), as described in the DSM-5, involves children diagnosed with "Autistic Disorder," "Asperger's Disorder," and "Pervasive Developmental Disorder," as defined in previous imprints of the DSM
Which aspects of QoL are the most impacted there by the factors that influence parental QoL? The efforts were laid to understand the role of leisure that affects the QoL of parents/ primary caregivers
The finding shows that parents had the same level of leisure activity in comparison with the normally developing population
Summary
Autism is a distinct mental disorder characterized by deficient relationships between people with communication difficulties. The duration and process of caregiving to a child with autism are extremely demanding and strenuous It demands a greater sacrifice on behalf of the mother and they may constantly have to face sadness, disappointment, anger, depression, and other complex emotions. Facets of family life that affected by the diagnosis of autism are family recreation, finances, parents' physical and mental wellbeing, meeting siblings' needs, sibling relationships, marital relationships, housekeeping, relationships with friends, neighbors, and relatives. The impacts on various aspects of family lives are affected including general household chores, expenditure, minimized recreation and leisure activities, significant stress throughout all family members, physical health of family members, ignorance or neglect of other children's needs, strained sibling relationships. Having an autistic child is stressful and time-consuming This often conflicts with the need and desire to spend time with other family members neglecting their own needs and self-care
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