Abstract
Jean Dominique Bauby suffered from locked-in syndrome after a brainstem injury. He left us a narrative of his convalescence in the book entitled The Diving Bell and the Butterfly, first published in France in 1997. Based upon this book, Julian Schnabel directed the film of the same title, which provides an account of the evolution of a patient with such a condition. In the film, Jean Dominique asks himself questions about the meaning of life, and shows us the resources he used in order to fuel his will to live: memory and imagination. These resources, along with the love shown to him by his family and friends, became his “beacon” -a symbol of his resilience and hope. The film also addresses the attitudes of health care professionals and of society at large concerning such a dramatic situation.
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