Abstract
The two-faced experience of people suffering from neuromuscular diseases: retraction and extension Focusing on the experience of people suffering from neuromuscular diseases, the author shows that the disease and the use of technical aids to survive and to live are not only disrupting the self (biographical disruption), but also transforming the links which define the person, its body and its world. The disease produces a movement of retraction: the person' s body and world are simultaneously reduced. The adjustment, material and emotional, to the wheelchair produces a movement of extension. This analyses leads to the suspension of body's and person's boundaries. The adjustment is both opening and closing of the person.
Sign-in/Register to access full text options 
Free) 
Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a call
