Abstract

Knowledge of knee osteoarthritis (OA) and its management options affects adherence to treatment, symptoms, and function. Many sociocultural differences exist between Jordan, as a representative of the Middle East, and the developed world which might influence the knowledge of the pathology and its impact on health. Objectives. To explore the knowledge of the pathology and the experience of people diagnosed with knee OA living in Jordan. Methods. Qualitative study design using a triangulation method of both focus groups and in-depth semistructured interviews. Fourteen participants were included (13 females and one male). One focus group and seven in-depth semistructured interviews were conducted. Discussions were audiotaped and transcribed. Framework analysis was used, and data were mapped to the International Classification of Functioning, Disability and Health framework. Results. The themes are as follows: (1) body functions and structures included two subthemes: physical changes and psychological impact; (2) activity limitation and participation restriction included three subthemes: factors influencing the activities, cultural and social perspectives to activity limitation, and participation restriction; (3) personal factors included three subthemes: knowledge and personal interpretation of disease process, knowledge of management options to relief symptoms, and influence of personal factors on activity and participation; and (4) environmental factors included three subthemes: service delivery process, ineffective communication across the care pathway, and facilitators and barriers. Conclusions. Knowledge of the disease was lacking as a consequence of inappropriate service delivery and culture. Activity limitations and participation restrictions are similar in Jordan to other cultures in addition to limitations in religious, employment, and transportation activities. The results demonstrate that the effect of knee OA varies among different cultures and highlight the role of healthcare professionals worldwide in understanding the impact of culture on health. They also increase the awareness of healthcare professionals, specifically in Jordan, on the limitations in delivered services and the importance of education.

Highlights

  • Knee osteoarthritis (OA) has a major effect on function and quality of life [1]

  • We reported our procedure and results according to the Standards for Reporting Qualitative Research (SRQR) checklist [10] (Appendix 1)

  • Culture and lifestyle in the Middle East are different when compared to the developed world, which could influence the experience of people with knee OA

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Summary

Introduction

Lack of knowledge of knee OA and its management options decreases adherence to treatment and affects symptoms and function and increases healthcare costs [2, 3]. People living mainly in the developed world identified many aspects to affect their experience with the disease including level of understanding of the pathology, its symptoms, how others perceive it, and functional impairment [4]. These aspects cannot express the experiences of people from different cultural backgrounds in the developing world such as the Middle East. Hawamdeh and Al-Ajlouni [5] showed that Jordanians have higher severity of knee OA compared to the developed world, and they referred this to higher body mass index and cultural habits such as praying and cross-sitting

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