Abstract
Background: This study aimed to gain an understanding of the challenges faced by people with hearing impairment (HI) in Cameroon, their understanding of the causes of HI, and how challenges could be remedied to improve the quality of life of persons with HI.Methods: Semi-structured one-on-one in-depth interviews and observation of participant behaviour when answering questions were used to collect data from 10 HI professionals (healthcare workers and educationists), and 10 persons affected by HI (including caregivers).Results: The results show that the different groups associate the causes of HI to genetics, environmental factors, and a spiritual curse. There were reported cases of stigma and discrimination of persons with HI, with people sometimes referring to HI as an “intellectual disorder.” Interviewees also highlighted the difficulty persons with HI have in accessing education and healthcare services and suggested the need for the government and health researchers to develop strategies for the prevention and early diagnosis of HI. These strategies include (1) the awareness of the general population regarding HI, (2) the development of facilities for the proper management and new-born screening of HI, and (3) the implementation of a premarital screening to reduce the burden of HI of genetic origin.Conclusions: This study confirms the difficult social interaction and access to proper management faced by persons with HI in Cameroon and further highlights the need to educate populations on the causes of HI for a better acceptance of individuals with HI in the Cameroonian society.
Highlights
This study aimed to gain an understanding of the challenges faced by people with hearing impairment (HI) in Cameroon, their understanding of the causes of HI, and how challenges could be remedied to improve the quality of life of persons with HI
There is a need to educate the general population on the causes of hearing impairment; this should mitigate negative thoughts surrounding HI and allow a better acceptance and integration of people with HI in society
This study shows that the cause of HI can be perceived as a curse like other communities, and people with HI are faced with stigma, discrimination, and difficult access to proper health care management
Summary
This study aimed to gain an understanding of the challenges faced by people with hearing impairment (HI) in Cameroon, their understanding of the causes of HI, and how challenges could be remedied to improve the quality of life of persons with HI. An estimated 466 million people are currently living with HI, the majority (over 80%) of which are based in low- and middleincome countries [3]. HI can be caused due to genetic or environmental factors, and in many cases, it is not possible to establish a definite aetiology [5,6,7]. Environmental factors such as meningitis, measles, or ototoxicity are the leading causes of HI in low- and middle-income countries, while their burden is lower in high-income countries [6, 8,9,10]. Depending on whether there are additional clinical signs or not, genetic HI cases are classified as syndromic or non-syndromic
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