Abstract
BackgroundType 1 Diabetes (T1D) has a negative impact on psychological and overall well-being. Screening for Health-related Quality of Life (HrQoL) and addressing HrQoL issues in the clinic leads to improved well-being and metabolic outcomes. The aim of this study was to translate the generic and diabetes-specific validated multinational DISABKIDS® questionnaires into Danish, and then determine their validity and reliability.MethodsThe questionnaires were translated using a validated translation procedure and completed by 99 children and adolescents from our diabetes-department; all diagnosed with T1D and were aged between 8 and 18 years old. The Rasch and the graphical log linear Rasch model (GLLRM) were used to determine validity. Monte Carlo methods and Cronbach’s α were used to confirm reliability.ResultsThe data did not fit a pure Rasch model but did fit a GLLRM when item six in the independence scale is excluded. The six subscales measure different aspects of HrQoL indicating that all the subscales are necessary. The questionnaire shows local dependency between items and differential item functioning (DIF). Therefore age, gender, and glycated hemoglobin (HbA1c) levels must be taken into account when comparing HrQoL between groups.ConclusionsThe Danish versions of the DISABKIDS® chronic-generic and diabetes-specific modules provide valid and objective measurements with adequate reliability. These Danish versions are useful tools for evaluating HrQoL in Danish patients with T1D. However, guidelines on how to manage DIF and local independence will be required, and item six should be rephrased.
Highlights
Type 1 Diabetes (T1D) has a negative impact on psychological and overall well-being
DISABKIDS® started as a European-Commission-funded project aiming to develop instruments for assessing Health-related Quality of Life (HrQoL) in children and adolescents with chronic conditions
Fifty-eight children responded to DISABKIDS-Chronic-Generic Module (DCGM-37) and Diabetes-Specific Module (DSM-10) questions at both inclusion and follow-up
Summary
Type 1 Diabetes (T1D) has a negative impact on psychological and overall well-being. Screening for Health-related Quality of Life (HrQoL) and addressing HrQoL issues in the clinic leads to improved well-being and metabolic outcomes. Research indicates that monitoring and discussing Health-related Quality of Life (HrQoL) in adolescents with T1D improves their psycho-social wellbeing [3]. This must be maintained as part of an ongoing process to sustain these beneficial effects in patients [4]. DISABKIDS® started as a European-Commission-funded project aiming to develop instruments for assessing HrQoL in children and adolescents with chronic conditions. It was developed collaboratively among seven European countries: Germany (where the European DISABKIDS® coordination Group resides), Austria, the Netherlands, France, Greece, the United Kingdom, and Sweden. DISABKIDS® consists of a joint chronic-generic module (DCGM-37)
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