“It’s Not Easy Being Around That Kind of Sickness”: Intellectual Disability and the COVID-19 Pandemic

Abstract

The COVID-19 pandemic has disproportionately affected people with intellectual and developmental disabilities (I/DD), and yet their perspectives and experiences have not been incorporated into the vast majority of research, public health plans, or social service provision. This article presents the pandemic experiences of twelve adults with I/DD living in the United States in late spring 2020. Findings include informants’ uncertainty about the virus and its impacts, difficulties navigating changes to housing, employment, and schedules, increased feelings of personal responsibility, and exacerbated tensions in professional and personal relationships. I conclude with recommendations for research, policy, and practice that privilege the lived experiences of people with I/DD during times of crisis.