Abstract
Patients with HIV not only have to deal with the challenges of living with an incurable disease but also with the dilemma of whether or not to disclose their status to their partners, families and friends. This study explores the extent to which sub-Saharan African (SSA) migrant women in Belgium disclose their HIV positive status, reasons for disclosure/non-disclosure and how they deal with HIV disclosure. A qualitative study consisting of interviews with twenty-eight SSA women with HIV/AIDS was conducted. Thematic content analysis was employed to identify themes as they emerged. Our study reveals that these women usually only disclose their status to healthcare professionals because of the treatment and care they need. This selective disclosure is mainly due to the taboo of HIV disease in SSA culture. Stigma, notably self-stigma, greatly impedes HIV disclosure. Techniques to systematically incorporate HIV disclosure into post-test counseling and primary care services are highly recommended.
Highlights
There is still growing concern over the rise in new cases of HIV diagnosed in the European Union (EU), as stated by the European Centre for Disease Prevention and Control (ECDC) [1]
It is possible that HIV infection may have occurred outside Belgium, with the positive test results being received in Belgium
A qualitative study based on semi-structured interviews with sub-Saharan African (SSA) migrant women receiving HIV/AIDS treatment and care in Belgium, either identified by health care professionals from consultation lists or self-identified while attending HIV conferences as people living with HIV/ AIDS
Summary
There is still growing concern over the rise in new cases of HIV diagnosed in the European Union (EU), as stated by the European Centre for Disease Prevention and Control (ECDC) [1]. In Belgium there are about 25,879 people living with HIV/AIDS and about 4,550 of the 13,352 patients receiving care are sub-Saharan African (SSA) migrant women. Men having sex with men and SSA migrants are the main groups with a high prevalence of HIV. In 2012, an estimated 1227 new HIV diagnoses were registered in Belgium, of which about 354 diagnoses were in SSA migrant women [2]. According to Belgian law, voluntary testing is the norm but in certain conditions it is very difficult to refuse or avoid testing. This is the case, for example, for asylum seekers.
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