Abstract
Background:Home-based HIV care has been identified as means of improving access to HIV care and reducing HIV-related stigma, while easing overload in facility-based care and providing cost effective community-based social supports. Few evaluations, however, focus on the impactof barriers such as homelessness, imprisonment and substance abuse to the continuity of this model of health care provision. This paper examines the challenges, strategies, and outcomes of a long-standing home-based HIV nursingprogram from a Foucauldian analytic perspective. Methods: Findings are presented from the evaluation of a home care nursing team providing HIV care to unstably housed individuals in Vancouver’s inner city. Employing ethnographic methodology, participant observation was conducted over nine months, along with serial open-ended qualitative interviews with the nursing team (n=4) and home care clients (n=16). Interviews were audio recorded and transcribed; an interpretive thematic analysis of field notes and interview transcripts was conducted. Results: Although adherence to antiretroviral therapy was consistent over the study course, men and women’s responses to care varied over time. Nurses who were sensitive to the ways in which enhanced surveillance within the private sphere of participants’ lives was cause for resistance to care employed a number of strategies to maintain these relationships. Variability among nurses regarding local (i.e. street) knowledge, along with understandings of what constitutes appropriate supportive measures, also impacted participants’ responses to care. Conclusions: The type and extent of support services is continually negotiated between nurses and participants, creating a potential source of tension between the guiding of health-related decisions and participants’ constitution of themselves as autonomous. Foucault’s concept of governmentality is applicable here, and may elucidate how norms, capacities and subjectivities are mutually created through its processes. The findings support an understanding of autonomy that is interpersonally, as well as institutionally, relational. Successful programming requires careful attention to the everyday experiences of participants, facilitated by continuity of providers andmentorship for newer nurses engaging in home-based HIV care. SuzeBerkhout is supported by the Canadian Institutes for Health Research, The Michael Smith Foundation for Health Research, Providence Health, and Vancouver Coastal Health Research Institute.
Sign-in/Register to access full text options 
Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a callDisclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.
