Abstract
People with dementia often report experiencing a ‘shrinking world’ connected with reduced opportunities to access physical and social spaces. This article applies the framework of social health (Dröes et al., 2017; Huber et al., 2011) as a theoretical lens through which to consider how inclusive walking groups can facilitate access to places and spaces to support people with dementia to remain connected in their communities. Findings are reported from walking interviews and focus group discussions with people with dementia, family carers, volunteers and walk leaders who participated in a national programme of dementia-friendly walking groups in Scotland. Thematic analysis of the data demonstrates that participation has a positive impact on social health, supporting people living with dementia to fulfil their potential, to engage in meaningful activity and to manage both their condition and their wider lives. Benefits include providing a context for continuing social participation and relationships for people with dementia and family carers. Additionally, groups provide a safe space where people with dementia can walk with autonomy and help to reinforce a sense of capacity and agency. Wider implications include the role of walking groups in fostering interdependencies between people with dementia and their wider communities by promoting an enabling ethos of dementia ‘inclusiveness.’ The benefits of developing an inclusive and supportive approach to involving people living with dementia in walking groups could extend more broadly to the wider community, with such initiatives acting as a catalyst for growing levels of social participation.
Highlights
Dementia represents a growing health and social care challenge facing most Western societies, including the UK where 800,000 people currently live with dementia (Prince et al, 2014)
While literature on ‘dementia-friendly’ communities has tended to focus narrowly on the built environment, we extend the notion of ‘dementia-enabling’ environments to report on how walking initiatives can support people living with dementia to remain connected to their communities via valued outdoor spaces
Our findings provide new insight into how social initiatives and interventions embedded in communities, and which facilitate continued participation of people with dementia with other people within these communities, can improve the social health of people living with dementia (Vernooij-Dassen et al, 2018)
Summary
Dementia represents a growing health and social care challenge facing most Western societies, including the UK where 800,000 people currently live with dementia (Prince et al, 2014). Social Inclusion, 2020, Volume 8, Issue 3, Pages 113–122 mean people with dementia frequently experience a ‘shrinking world’ characterised by reduced opportunities to access physical and social spaces (Duggan, Blackman, Martyr, & van Schaik, 2008). For example, remain around whether these efforts put too great an emphasis on the physical environment, failing to address significant social and structural factors that may isolate or exclude people with dementia (Wright, 2014). Such perspectives argue that what is needed is not a community that is dementia ‘friendly’ but one that is ‘dementia-enabling’ (Swaffer, 2015). This phrasing posits that the opposite of a ‘dementia-friendly’ community is not one that is ‘unfriendly’ but a community that actively disables and inhibits the rights and agency of its residents with dementia (Shakespeare, Zeilig, & Mittler, 2019)
Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Disclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.