Abstract

Institutional review boards (IRBs) that refuse to grant waivers of guardian permission may hinder research to inform needed online sexual health interventions for adolescent males interested in sex with males (AMSM). Information on the challenges of obtaining (or waiving) guardian permission is imperative. In June and July 2017, AMSM (N = 206; ages 14 to 17) in the United States completed an online survey on sexual behaviors, sexually explicit media use, and sexual education exposure/needs. A mixed-methods approach assessed attitudes toward guardian permission for the current survey and future online sexual health intervention research. Logistic regression models assessed differences by “outness” to a guardian. A framework matrix analysis was conducted to summarize, then aggregate, qualitative responses. Findings indicated that most AMSM would not participate if guardian permission was required (current: 83%; future: 87%). Youth who were not out were more likely to say they would not participate (current: adjusted odds ratio [AOR] = 2.8, 95% confidence interval [CI]: 1.2 to 6.8); future: AOR = 4.7, 95% CI: 1.6 to 13.5). Participants reported that guardian permission would be an invasion of their privacy, lead to involuntary outing, and endanger participants. Overall, guardian permission appears to be a barrier to AMSM participation in online sexual health research. Investigators and IRBs should consider alternative practices and policies to facilitate such research.

Highlights

  • Is Guardian Permission a Barrier to Online Sexual Health Research Among Adolescent Males Interested in Sex With Males?

  • In lieu of relevant sexual education, Adolescent males interested in sex with males (AMSM) turn to the Internet to obtain sexual health information and to locate sexual health–related services (DeHaan, Kuper, Magee, Bigelow, & Mustanski, 2013; Magee et al, 2012)

  • A barrier to the inclusion of AMSM in sexual health research is the stance that many institutional review boards (IRBs) take in requiring guardian permission for research involving underage AMSM

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Summary

Introduction

Is Guardian Permission a Barrier to Online Sexual Health Research Among Adolescent Males Interested in Sex With Males?. Institutional review boards (IRBs) that refuse to grant waivers of guardian permission may hinder research to inform needed online sexual health interventions for adolescent males interested in sex with males (AMSM). A mixed-methods approach assessed attitudes toward guardian permission for the current survey and future online sexual health intervention research. Guardian permission appears to be a barrier to AMSM participation in online sexual health research. Adolescent males interested in sex with males (AMSM) are at elevated risk for human immunodeficiency virus (HIV) in the United States, accounting for 93% of new infections among males in their age cohort (Centers for Disease Control and Prevention [CDC], 2016). Sexual education interventions that serve AMSM, preferably before sexual behavior patterns are formed, are essential to addressing HIV disparities among these youth

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