Abstract
This chapter outlines the challenges of obtaining institutional review board (IRB) coverage for community-based participatory research (CBPR) projects. Community-based participatory research focuses on problems that affect whole communities and thus is different from most biomedical research, which takes the individual as its primary subject. In CBPR projects, researchers work closely with community members and community-based organizations to develop appropriate research agendas, conduct analyses, and disseminate results and information. In general, IRBs are unfamiliar with this approach to research, reluctant to take responsibility for the actions of community partner organizations, and resistant to interaction between researchers and participants. Their hesitation causes significant delays and may prevent effective research and dissemination of results. The chapter then suggests concrete ways in which IRBs and funders can develop clear review guidelines that respect the unique qualities of CBPR.
Published Version
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