Abstract

BackgroundGuidelines for improving the quality of maternal health services emphasise women’s involvement in care. However, evidence about migrant and ethnic minorities’ preferences for participation in maternal care remains unsystematised. Understanding these populations’ experiences with and preferred forms of involvement in care provision is crucial for imbuing policies and guidelines with sensitivity to diversity and for implementing people-centred care. This paper presents a narrative synthesis of empirical studies of involvement in maternal health care by migrants and ethnic minorities based on four key dimensions: information, communication, expression of preferences and decision-making.MethodsStudies indexed in PubMed and Scopus published until December 2019 were searched. Original quantitative, qualitative and mixed methods studies written in English and reporting on migrant and ethnic minority involvement in maternal care were included. Backward reference tracking was carried out. Three researchers conducted full-text review of selected publications.ResultsIn total, 22 studies met the inclusion criteria. The majority of studies were comparative and addressed only one or two dimensions of involvement, with an emphasis on the information and communication dimensions. Compared to natives, migrants and ethnic minorities were more likely to (1) lack access to adequate information as a result of health care staff’s limited time, knowledge and misconceptions about women’s needs and preferences; (2) report suboptimal communication with care staff caused by language barriers and inadequate interpreting services; (3) be offered fewer opportunities to express preferences and to have preferences be taken less into account; and (4) be less involved in decisions about their care due to difficulties in understanding information, socio-cultural beliefs and previous experiences with care provision less attuned with playing an active role in decision-making and care staff detracting attitudes.ConclusionConstraints to adequate and inclusive involvement in maternal care can hinder access to quality care and result in severe negative health outcomes for migrant and ethnic minority women. More research is needed into how to tailor the dimensions of involvement to migrant and ethnic minorities’ needs and preferences, followed by provision of the resources necessary for effective implementation (e.g. sufficient time for consultations, optimal interpreter systems, health care staff training).

Highlights

  • Guidelines for improving the quality of maternal health services emphasise women’s involvement in care

  • More research is needed into how to tailor the dimensions of involvement to migrant and ethnic minorities’ needs and preferences, followed by provision of the resources necessary for effective implementation

  • This paper aims to synthesise existing knowledge about migrant and ethnic minority involvement in maternal care by providing a narrative review of empirical studies on this issue

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Summary

Introduction

Guidelines for improving the quality of maternal health services emphasise women’s involvement in care. The rising number of people living outside their countries of origin poses a public health challenge as migrants and ethnic minorities tend to be more negatively affected by inequities in health status and access to health care than native populations [2]. Access to maternal care is reported to be worse for migrants than for natives, especially for displaced and refugee populations and those with irregular status and a low socioeconomic position [3, 4]. This is problematic because pregnant women are an especially vulnerable group and limited access to needed care impends on their right to health and healthy child development [3]. While most studies have shown poorer outcomes among migrants (e.g. complicated pregnancies, low birth weight, preterm delivery, congenital malformations, abortion), some studies reported improved outcomes (e.g. pre-eclampsia, eclampsia, breastfeeding, low birth weight) and other studies have found no differences between migrant and native groups (e.g. pregnancy complications, preterm delivery) [5, 11,12,13,14,15,16,17]

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