Abstract
The National Children’s Study (NCS) evolved in concept and planning to become an integrated systems based initiative to assess a full spectrum of health and capture the environmental factors and other influences that shape the trajectory of child development. The NCS built on prior work in health assessment, epidemiology, logistics, and methodology in order to address the broad goals of its mandate. To develop the specific methods and tools to conduct a study in multiple environments outside conventional health care delivery clinics the NCS invested in new approaches such as informatics, study operations, and the establishment of a Health Measurements Network to provide accurate, cost effective, and scientifically valid data that would be interoperable with data collected by other longitudinal studies around the world as well as with major national and international health improvement initiatives.
Highlights
AND ORIGINSIn 1998, the President’s Task Force on Health Risks and Safety Risks to Children recommended a large study to identify risks associated with broad environmental exposures as a critical first step in addressing environmental risk factors affecting the health and development of children in the United States (US) [1] The National Children’s Study (NCS) was proposed in the year 2000 as part of the Children’s Health Act, Public Law 106-310
2. the empirical experience of the Vanguard Study 3. the review and comments provided by multiple rounds of independent scientific reviews and expert panels as well as by comments from the general public received during meetings and Requests for Information
The NCS took a long-term perspective and had to develop a conceptual framework, recruitment approaches, data collection content and methods, an informatics platform, and analytic resources in order to meet its goals and anticipate that conditions, resources, and priorities will continue to change over the quarter century
Summary
In 1998, the President’s Task Force on Health Risks and Safety Risks to Children recommended a large study to identify risks associated with broad environmental exposures as a critical first step in addressing environmental risk factors affecting the health and development of children in the United States (US) [1] The National Children’s Study (NCS) was proposed in the year 2000 as part of the Children’s Health Act, Public Law 106-310. 2. Gather data on environmental influences and outcomes on diverse population for children, which may include the consideration of prenatal exposures. 3. Consider health disparities among children which may include the consideration of prenatal exposures [2].
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