Abstract

BackgroundThe prevalence of major chronic illnesses, such as chronic obstructive pulmonary disease (COPD) and diabetes, is increasing. Pulmonary rehabilitation and diabetes self-management education are important in the management of COPD and diabetes respectively. However, not everyone can participate in the programmes offered at a hospital or other central locations, for reasons such as travel and transport. Internet-enabled home-based programmes have the potential to overcome these barriers.This study aims to assess patient acceptability of the delivery form and components of Internet-enabled programmes based on home groups for comprehensive pulmonary rehabilitation and for diabetes self-management education.MethodsWe have developed Internet-enabled home programmes for comprehensive pulmonary rehabilitation and for diabetes self-management education that include group education, group exercising (COPD only), individual consultations, educational videos and a digital health diary. Our prototype technology platform makes use of each user’s own TV at home, connected to a computer, and a remote control. We conducted a six-week home trial with 10 participants: one group with COPD and one with diabetes. The participants were interviewed using semi-structured interviews.ResultsBoth home-based programmes were well accepted by the participants. The group setting at home made it possible to share experiences and to learn from questions raised by others, as in conventional group education. In the sessions, interaction and discussion worked well, despite the structure needed for turn taking. The thematic educational videos were well accepted although they were up to 40 minutes long and their quality was below TV broadcasting standards. Taking part in group exercising at home under the guidance of a physiotherapist was also well accepted by the participants. Participants in the COPD group appreciated the social aspect of group education sessions and of exercising together, each in their own home. The digital health diary was used as background information in the individual consultations and by some participants as a self-management tool. Participant retention was high, with no dropouts. None of the participants reported that the six-week duration of the home programmes was too long.ConclusionsThe Internet-enabled programmes for home-based groups in pulmonary rehabilitation and diabetes education were generally well accepted by the participants. Our findings indicate that conventional programmes have the potential to be delivered in socially supportive group settings at home.

Highlights

  • The prevalence of major chronic illnesses, such as chronic obstructive pulmonary disease (COPD) and diabetes, is increasing

  • Chronic diseases cause a huge burden to society, and increasing numbers of people are suffering from major chronic diseases such as chronic obstructive pulmonary disease (COPD) and diabetes

  • Principal results Our findings indicate that the Internet-enabled homegroup programmes for diabetes education and for pulmonary rehabilitation were acceptable to patients, and their perceptions of the form of delivery as well as the programme components were positive

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Summary

Introduction

The prevalence of major chronic illnesses, such as chronic obstructive pulmonary disease (COPD) and diabetes, is increasing. This study aims to assess patient acceptability of the delivery form and components of Internet-enabled programmes based on home groups for comprehensive pulmonary rehabilitation and for diabetes self-management education. Chronic diseases cause a huge burden to society, and increasing numbers of people are suffering from major chronic diseases such as chronic obstructive pulmonary disease (COPD) and diabetes. Pulmonary rehabilitation is recognised as a standard and important part of COPD management [3,4,5,6]. It is a comprehensive, multidisciplinary intervention; a pulmonary rehabilitation programme includes education, training, psychosocial support, and patient assessment [3]. Pulmonary rehabilitation is commonly offered as hospital- or community-based outpatient programmes in group settings, lasting 8 to 12 weeks

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