Abstract
BackgroundThe Swedish Maternal Health Care Register (MHCR) is a national quality register that has been collecting pregnancy, delivery, and postpartum data since 1999. A substantial revision of the MHCR resulted in a Web-based version of the register in 2010. Although MHCR provides data for health care services and research, the validity of the MHCR data has not been evaluated. This study investigated degree of coverage and internal validity of specific variables in the MHCR and identified possible systematic errors.MethodsThis cross-sectional observational study compared pregnancy and delivery data in medical records with corresponding data in the MHCR. The medical record was considered the gold standard. The medical records from nine Swedish hospitals were selected for data extraction. This study compared data from 878 women registered in both medical records and in the MHCR. To evaluate the quality of the initial data extraction, a second data extraction of 150 medical records was performed. Statistical analyses were performed for degree of coverage, agreement and correlation of data, and sensitivity and specificity.ResultsDegree of coverage of specified variables in the MHCR varied from 90.0% to 100%. Identical information in both medical records and the MHCR ranged from 71.4% to 99.7%. For more than half of the investigated variables, 95% or more of the information was identical. Sensitivity and specificity were analysed for binary variables. Probable systematic errors were identified for two variables.ConclusionsWhen comparing data from medical records and data registered in the MHCR, most variables in the MHCR demonstrated good to very good degree of coverage, agreement, and internal validity. Hence, data from the MHCR may be regarded as reliable for research as well as for evaluating, planning, and decision-making with respect to Swedish maternal health care services.
Highlights
The Swedish Maternal Health Care Register (MHCR) is a national quality register that has been collecting pregnancy, delivery, and postpartum data since 1999
This study investigate the validity of data entered in the MHCR
Background presentation Corresponding data on pregnancy and delivery from medical records and the MHCR were collected from 878 medical records at nine hospitals
Summary
The Swedish Maternal Health Care Register (MHCR) is a national quality register that has been collecting pregnancy, delivery, and postpartum data since 1999. MHCR provides data for health care services and research, the validity of the MHCR data has not been evaluated. Health data registers and quality registers Nordic countries have a long tradition of using populationbased health data registers to monitor the general population. These health data registers include the Swedish Cause of Death Cause Register (1952), the Swedish Cancer Register (1958), the Norwegian Medical Birth Register (1967), and the Swedish Medical Birth Register (1973) [1]. The major part of quality registers are financed by the Swedish government and the Swedish Association of Local Authorities and Regions, government entities that have deemed it a national priority that quality registers should cover at least 80% of the population [7]
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