Abstract

Purpose: This study was conducted to clarify the utility of patient-held records as an integrated care approach for patients with dementia in the community. Method: We analyzed the family-held/patient-held records of patients with dementia in the community. The inclusion criteria in the study were as follows: 1) patient-held/family member-held records of patients with dementia in the community; 2) patient-held records designed to share information across different professionals, direct-care staff members, and local government staff; and 3) the continuous participation of psychiatrists in the development and use of the patient-held records. Results: We identified eight sets of family-held/patient-held records in Japanese communities of various sizes, all of which were aimed at integrating information from various services, including information provided by medical and psychiatric professionals to the family and patient. Innovative tools have been available in the areas of the hopes and preferences of the patient, medication and monitoring, sharing information, and the use of information technology. Conclusion and Discussion: Family-held/patient-held records have potential as a tool to enhance the integrated care of people with dementia in the community.

Highlights

  • Dementia has become a major public health concern worldwide due to the aging populations in many countries [1]

  • Dementia care comprises more than psychiatry alone, it is necessary to consult with a psychiatrist when behavioural and psychological symptoms of dementia appear

  • The results of our analysis showed that family-held/patient-held medical records for patients with dementia in the community are widespread in Japan

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Summary

Introduction

Dementia has become a major public health concern worldwide due to the aging populations in many countries [1]. Japan is facing a “super-aging” society with an increasing number of elderly individuals [2]. As the number of aged people increases, so does the number of people with dementia. According to the results of a multicentre epidemiological study in Japan, the numbers (prevalence per population) of individuals aged 65 and over with dementia and mild cognitive impairment were 4.6 million (15%) and 4.0 million (13%) respectively [3]. Integrated care is an essential concept for caring for people with dementia in the community. It is necessary for them to receive nonmedical community social services

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