Integrating music therapy into pediatric palliative care

Abstract

Palliative care programs in pediatric settings exist to support patients and families when a life-threatening illness results in an uncertain prognosis. Consistent and open communication within the healthcare team, as well as between the team and families, is vital for providing optimal care while simultaneously instilling a sense of choice and control in patients and family members. Parents value a trusting relationship with medical staff in order to be a partner in the child's care. Music therapy is seen as an integral component within the scope of multi-disciplinary services offered to provide patient- and family-centered care, encourage positive coping, and enhance quality of life. Grounded in a palliative care philosophy, a sense of hope is always encouraged despite the circumstances, although various ‘lenses’ may be offered to help reframe hope. Board-certified music therapists provide creative opportunities for expression and assist in pain management using non-pharmacological modalities. Through literature review and case examples, this study aims to share how music therapy interventions, such as songwriting, help to make positive memories and provide support during treatment and at end-of-life. The benefits of integrating music therapy interventions into pediatric palliative care services in order to encourage bonding and legacy building from a parent or sibling perspective will be highlighted. Aspects of developing both a music therapy and palliative care program in a pediatric setting will be discussed. Opportunities to educate healthcare providers on utilization of services will also be shared.