Abstract
BackgroundDespite a strong movement towards active patient involvement in healthcare policy decisions, systematic and explicit consideration of evidence of this research on patient preferences seems limited. Furthermore, little is known about the opinions of several stakeholders towards consideration of research evidence on patient preferences in healthcare policy decisions. This paper describes the protocol for an explorative study on the integration of research on patient preferences in healthcare policy decisions. The study questions: to what extent research evidence on patient preferences is considered in current procedures for healthcare policy decisions; opinions of stakeholders regarding the integration of this type of evidence in healthcare policy decisions; and what could be a decision framework for the integration of such research evidence in healthcare policy decisions.Methods/designThe study is divided in three sub-studies, predominantly using qualitative methods. The first sub-study is a scoping review in five European countries to investigate whether and how results of research on patient preferences are considered in current procedures for coverage decisions and clinical practice guideline development. The second sub-study is a qualitative study to explore the opinions of stakeholders with regard to the possibilities for integrating evidence on patient preferences in the process of healthcare decision-making in the Netherlands. The third sub-study is the development of a decision framework for research on patient preferences. The framework will consist of: a process description regarding the place of evidence on patient preferences in the decision-making process; and a taxonomy describing different terminologies and conceptualisations of ‘preferences’ and an overview of existing methodologies for investigating preferences. The concept framework will be presented to and discussed with experts.DiscussionThis study will create awareness regarding the existence and potential value of research evidence on patient preferences for healthcare policy decision-making and provides insight in the methods for investigating patient preferences and the barriers and facilitators for integration of such research in healthcare policy decisions. Results of the study will be useful for researchers, clinical practice guideline developers, healthcare policy makers, and patient representatives.
Highlights
Despite a strong movement towards active patient involvement in healthcare policy decisions, systematic and explicit consideration of evidence of this research on patient preferences seems limited
Results of the study will be useful for researchers, clinical practice guideline developers, healthcare policy makers, and patient representatives
Study 1: scoping review The aim of the scoping review is to investigate whether and how results of research on patient preferences are considered in current procedures for coverage decisions and clinical practice guideline (CPG) development
Summary
Despite a strong movement towards active patient involvement in healthcare policy decisions, systematic and explicit consideration of evidence of this research on patient preferences seems limited. Little is known about the opinions of several stakeholders towards consideration of research evidence on patient preferences in healthcare policy decisions. Patient preferences are increasingly considered important in healthcare policy decision-making, with many stakeholders explicitly supporting and appreciating patient involvement and consideration of patient preferences [1,2]. Consideration of patient preferences in healthcare policy decisions may improve the uptake and real-world efficiency of healthcare technologies in its broadest sense. It may serve as an important and evidence-based source of information (e.g., for patient representatives in healthcare decision making), enhancing consumer empowerment. In general, consideration of patient views is considered as ethically the right thing to do
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