Abstract

BackgroundThe perspectives of citizens are an important and often overlooked source of evidence for informing health policy. Despite growing encouragement for its adoption, little is known regarding how citizen engagement may be integrated into evidence-informed health policy-making in low- and middle-income counties (LMICs) and newly democratic states (NDSs). We aimed to identify the factors and variables affecting the potential integration of citizen engagement into evidence-informed health policy-making in LMICs and NDSs and understand whether its implementation may require a different approach outside of high-income western democracies. Further, we assessed the context-specific considerations for the practical implementation of citizen engagement in one focus region—eastern Europe and central Asia.MethodsFirst, adopting a scoping review methodology, we conducted and updated searches of six electronic databases, as well as a comprehensive grey literature search, on citizen engagement in LMICs and NDSs, published before December 2019. We extracted insights about the approaches to citizen engagement, as well as implementation considerations (facilitators and barriers) and additional political factors, in developing an analysis framework. Second, we undertook exploratory methods to identify relevant literature on the socio-political environment of the focus region, before subjecting these sources to the same analysis framework.ResultsOur searches identified 479 unique sources, of which 28 were adjudged to be relevant. The effective integration of citizen engagement within policy-making processes in LMICs and NDSs was found to be predominantly dependent upon the willingness and capacity of citizens and policy-makers. In the focus region, the implementation of citizen engagement within evidence-informed health policy-making is constrained by a lack of mutual trust between citizens and policy-makers. This is exacerbated by inadequate incentives and capacity for either side to engage.ConclusionsThis research found no reason why citizen engagement could not adopt the same form in LMICs and NDSs as it does in high-income western democracies. However, it is recognized that certain political contexts may require additional support in developing and implementing citizen engagement, such as through trialling mechanisms at subnational scales. While specifically outlining the potential for citizen engagement, this study highlights the need for further research on its practical implementation.

Highlights

  • The perspectives of citizens are an important and often overlooked source of evidence for informing health policy

  • Building upon the work of EVIPNet, as well as its interest in the potential integration of citizen engagement (CE) within its remit, we focused on the Europe and central Asia (EE/CA) region, comprising both low- and middle-income counties (LMICs) and newly democratic states (NDSs)

  • Sources A total of 479 articles were identified through the initial literature search: 310 identified through the updated scoping review; 151 articles rejected by the previous scoping review of CE in Evidence-informed health policy-making (EIP) [16]; and 18 further sources provided by international colleagues (Fig. 1)

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Summary

Introduction

The perspectives of citizens are an important and often overlooked source of evidence for informing health policy. Despite growing encouragement for its adoption, little is known regarding how citizen engagement may be integrated into evidence-informed health policy-making in low- and middle-income counties (LMICs) and newly democratic states (NDSs). We aimed to identify the factors and variables affecting the potential integration of citizen engagement into evidence-informed health policy-making in LMICs and NDSs and understand whether its implementation may require a different approach outside of high-income western democracies. There are two types of evidence upon which health policy can be based, each comprising two subtypes: “explicit” knowledge consists of health data and systematic health research, while “tacit” knowledge comprises the beliefs and perspectives of policy-makers and citizens [3]. While adoption and institutionalization of evidence-informed approaches to health policy-making have increased globally, policy-makers tend to focus on the first three forms of evidence, neglecting the perspectives of citizens. These characteristics of CE can be presented as three separate, but interrelated, aims [9, 15]:

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