Abstract
BackgroundFetal Alcohol Spectrum Disorder (FASD) has a significant impact on communities and systems such as health, education, justice and social services. FASD is a complex neurodevelopmental disorder that results in permanent disabilities and associated service needs that change across affected individuals’ lifespans. There is a degree of interdependency among medical and non-medical providers across these systems that do not frequently meet or plan a coordinated continuum of care. Improving overall care integration will increase provider-specific and system capacity, satisfaction, quality of life and outcomes.MethodsWe conducted a consensus generating symposium comprised of 60 experts from different stakeholder groups: Allied & Mental Health, Education, First Nations & Métis Health, Advocates, Primary Care, Government Health Policy, Regional FASD Coordinators, Social Services, and Youth Justice. Research questions addressed barriers and solutions to integration across systems and group-specific and system-wide research priorities. Solutions and consensus on prioritized lists were generated by combining the Electronic Meeting System approach with a modified ‘Nominal Group Technique’.ResultsFASD capacity (e.g., training, education, awareness) needs to be increased in both medical and non-medical providers. Outcomes and integration will be improved by implementing: multidisciplinary primary care group practice models, FASD system navigators/advocates, and patient centred medical homes. Electronic medical records that are accessible to multiple medical and non-medical providers are a key tool to enhancing integration and quality. Eligibility criteria for services are a main barrier to integration across systems. There is a need for culturally and community-specific approaches for First Nations communities.ConclusionsThere is a need to better integrate care for individuals and families living with FASD. Primary Care is well positioned to play a central and important role in facilitating and supporting increased integration. Research is needed to better address best practices (e.g., interventions, supports and programs) and long-term individual and family outcomes following a diagnosis of FASD.
Highlights
Fetal Alcohol Spectrum Disorder (FASD) has a significant impact on communities and systems such as health, education, justice and social services
Overview Participants were seated at stakeholder group-specific tables comprised of 5–11 participants at each table which included: 1)Allied and Mental Health; 2) Criminal Justice; 3) Education; 4) FASD Regional Coordinators: 5) Government & Policy; 6) Parents and Advocates; 7) Primary Care; and 8) Social Services
Responses to Question #1 are summarized with themes
Summary
Fetal Alcohol Spectrum Disorder (FASD) has a significant impact on communities and systems such as health, education, justice and social services. Improving overall care integration will increase provider-specific and system capacity, satisfaction, quality of life and outcomes. Fetal Alcohol Spectrum Disorder (FASD) has emerged as having a significant impact on communities and systems within communities such as health (e.g., primary care, acute care and specialty care), education, justice and social services [1]. Masotti et al BMC Health Services Research (2015) 15:457 will increase provider-specific and overall system capacity This increased capacity will translate into a decreased impact of FASD (e.g., human health, secondary disabilities and economic), increased continuity of care, quality of life for individuals and families living with FASD, and increased provider satisfaction [4,5,6,7,8].
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