Abstract
Results The response rate was 47%. The most common questions asked by service users related to aetiology (22.5%) prognosis (42.6%) general treatment (16.8%) surgery (12.4%) and parental guilt (5.6%). 78.6% of consultants said that patients were provided with written information provided by a member of staff and written by the Scoliosis Association UK in 61.5% of cases. 92% of consultants referred patients to relevant web sites. Surgeons stressed the importance for information to be evidence-based, address patients anxieties and counselling needs, provide clear natural history information and address ways of contacting other patients with AIS who have or have not undergone surgery.
Highlights
Service usershealth information needs are very frequently not addressed in hospital clinics
Material and methods An electronic survey was emailed to senior consultants at 30 key scoliosis centres in the UK
The survey covered questions relating to the most common questions asked by service users when first diagnosed, whether any written information was provided and who had written this and whether patients were referred to any relevant web sites
Summary
Service usershealth information needs are very frequently not addressed in hospital clinics. The role of the patient as an active partner in health care is widely accepted and providing information to patients is considered fundamental [2]
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