Abstract
Quality of life (QoL) data are lacking in children with infantile hemangioma (IH) and their parents/caregivers. Available data are conflicting. To determine QoL of (parents of) patients with IH in the proliferative phase related to IH-severity and activity. Parents of 59 IH-patients (≤ 6months) were asked to fill in the Dutch IH-specific QoL-questionnaire (D-IH-QoL) within 1month after their first visit to our tertiary referral center. Hemangioma Severity Scale (HSS) score and Hemangioma Activity Score (HAS) were assessed. D-IH-QoL-scores were low; mean: 22.6 (range 1-56; max 116). Mean HSS score and HAS score were 8.4 (range 2-28) and 4.0 (range 1.5-6), respectively. Higher HSS scores correlated with worse QoL (ρ=.358; P=.005). HAS scores did not correlate with QoL scores. An IH only seems to have limited influence on QoL in young children and their parents in the first month of their first doctor's visit. QoL is more affected in more severe IH. Physicians should be alert to the impact of IH, optionally guided by the HSS score.
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