Abstract
HLC dyads from -0.02 to 0.2 (ICC Difference 1⁄4 0.22). Physical QOL Congruence increased slightly for both FACE dyads from 0.4 to 0.43 (ICC Difference 1⁄4 0.03) and HLC dyads from 0.5 to 0.59 (ICC Difference 1⁄4 0.09). School QOL Congruence decreased for FACE dyads from 0.51 to 0.08 (-0.43 ICC Difference) and increased from 0.66 to 0.82 for HLC dyads (0.16 ICC Difference). At baseline perinatally infected adolescents vs. behaviorally infected adolescents reported significantly higher QOL in two domains: Emotional (1⁄4 84.4 vs. 1⁄4 73.3; p 1⁄4 0.041) and Physical (1⁄4 91.0 vs. 1⁄4 84.5, p 1⁄4 0.058), otherwise there were no significant differences between them. Conclusions: Understanding adolescents’ QOL may influence familydecision-makingwith respect to futurehealthcareutilizationand end-of-life care. The FACE intervention increased communication in all domains, but School QOL, where adolescents denied problems and families reported problems. Higher Physical and Emotional QOL among perinatally infected adolescentswas unexpected. Thismight represent a measure of their access to medical and mental health care from birth in comprehensive “one-stop” hospital-based clinics. Sources of Support: Research reported in this abstract was supported by the National Institute of Nursing Research of the National Institutes of Health under Award Number R01NR012711 and the CTSI-CN UL1T75 from the NIH National Center for Advancing Translational Science.
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