Abstract

ObjectivesClinicians agree that children with isolated cleft lip have fewer cleft-associated problems than children with cleft lip and palate. Unfortunately, for isolated cleft lip children, the risk of cleft-associated problems is unknown and maybe underestimated. Often, these children do not get the required follow-up by a multidisciplinary team and thereby not the known benefits in supporting their development. This study examines the incidence of cleft-related speech problems and ear problems in children with isolated cleft lip.Materials and methodsA prospective study was performed on all children born with an isolated cleft lip and treated at the Wilhelmina Children’s Hospital in Utrecht between January 2007 and April 2014. Data were collected for sex, date of birth, genetics, cleft lip type, date of cleft lip repair, type of repair, speech/language problems, and ear problems.ResultsThis study included 75 patients (59% male). The mean age of the children at the moment of speech examination was 32.5 months (SD 6.1). Eighteen of the 75 children (24%) needed speech and language therapy; however, only one child (1.3%) had a cleft-related speech problem. Sixteen of the 75 patients (21%) reported a history of one or more episodes of acute otitis media (AOM)/otitis media with effusion (OME) during the first 6 years.Conclusion/clinical relevanceThis is the first prospective study analyzing the incidence of cleft-related speech problems in children with an isolated cleft lip. These children do not have a higher risk of cleft-related speech problems or AOM/OME when compared to the general population. However, children with an isolated cleft do have a higher incidence of speech therapy.

Highlights

  • The incidence of cleft lip/palate in the Netherlands ranges from 1.4 to 2.1 per 1000 [1]

  • This study provides insights in the development of cleft-associated problems in children with isolated cleft lip

  • The reported not cleft-associated speech disorders in this study was higher than in the general population (1–12%) (Table 5). This can be possible explained by the “extra” follow-up of a multidisciplinary team and the parents’ concern in children with an isolated cleft lip

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Summary

Introduction

The incidence of cleft lip/palate in the Netherlands ranges from 1.4 to 2.1 per 1000 [1]. Clinicians involved in the care of children with orofacial clefts agree that children with isolated cleft lip have fewer. Clin Oral Invest (2021) 25:823–831 cleft-associated speech and ear problems than children with cleft lip and palate [5]. Children with cleft lip and palate are analyzed in a multidisciplinary team. For children with an isolated cleft lip, the risk of cleft-associated speech and ear problems is unknown and maybe underestimated. It is possible these children do not get the required follow-up by a multidisciplinary team and thereby not the known benefits in supporting their development

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