Abstract

BackgroundRetaining participants over time is a frequent challenge in research studies evaluating long-term health outcomes. This study’s objective was to compare the impact of prepaid and postpaid incentives on response to a six-month follow-up survey.MethodsWe conducted an experiment to compare response between participants randomized to receive either prepaid or postpaid cash card incentives within a multisite study of children under 15 years in age who were hospitalized for a serious, severe, or critical injury. Participants were parents or guardians of enrolled children. The primary outcome was survey response. We also examined whether demographic characteristics were associated with response and if incentive timing influenced the relationship between demographic characteristics and response. We evaluated whether incentive timing was associated with the number of calls needed for contact.ResultsThe study enrolled 427 children, and parents of 420 children were included in this analysis. Follow-up survey response did not differ according to the assigned treatment arm, with the percentage of parents responding to the survey being 68.1% for the prepaid incentive and 66.7% with the postpaid incentive. Likelihood of response varied by demographics. Spanish-speaking parents and parents with lower income and lower educational attainment were less likely to respond. Parents of Hispanic/Latino children and children with Medicaid insurance were also less likely to respond. We found no relationship between the assigned incentive treatment and the demographics of respondents compared to non-respondents.ConclusionsPrepaid and postpaid incentives can obtain similar participation in longitudinal pediatric critical care outcomes research. Incentives alone do not ensure retention of all demographic subgroups. Strategies for improving representation of hard-to-reach populations are needed to address health disparities and ensure the generalizability of studies using these results.

Highlights

  • Prospective studies evaluating health outcomes over time depend on successful completion of follow-up assessments by enrolled participants

  • Full list of author information is available at the end of the article

  • To evaluate the effect of incentive timing, we limited the analyses to the 420 parents who were randomly assigned to an experimental arm

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Summary

Introduction

Prospective studies evaluating health outcomes over time depend on successful completion of follow-up assessments by enrolled participants. Minimizing participant attrition in longitudinal studies ensures statistical power, demographic representation, and preserves study validity and integrity [3,4,5,6,7,8]. Incentives are frequently used to encourage participants to complete follow-up assessments. Previous studies have evaluated how strategies such as incentives and contact methods affect retention in health and epidemiological research, including cohort studies and randomized trials [9,10,11,12]. Systematic reviews have shown that monetary incentives improve retention in randomized trials [9, 13] and prospective cohort studies [11]. Retaining participants over time is a frequent challenge in research studies evaluating long-term health outcomes. This study’s objective was to compare the impact of prepaid and postpaid incentives on response to a six-month follow-up survey

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