Abstract

Nearly three‐quarters of those who are taking care of people with Alzheimer's disease at home are unsure what would happen to their loved one if the caregiver got sick with the COVID‐19 coronavirus, according to a new survey by UsAgainstAlzheimer's A‐LIST. While the effects of COVID‐19 were highest among caregivers, the survey found more stress, isolation and financial concerns for the future among the entire group of respondents, which also included people living with the disease, former caregivers, people at significant likelihood of developing Alzheimer's, and those interested in brain health and advocacy. According to the survey, 76% say their stress is higher, including 18% saying it is significantly higher. The survey found that 57% feel more isolated and 72% are more concerned about their finances and their family's finances, including 27% who are much more concerned. The respondents say they are getting information about COVID‐19 from television (62%), news sites (34%), state and local government sites (33%), nongovernment health sites (21%) and federal government sites (20%).

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