Abstract

Advance Clinical and Translational Research (Advance-CTR) serves as a central hub to support and educate clinical and translational researchers in Rhode Island. Understanding barriers to clinical research in the state is the key to setting project aims and priorities. We implemented a Group Concept Mapping exercise to characterize the views of researchers and administrators regarding how to increase the quality and quantity of clinical and translational research in their settings. Participants generated ideas in response to this prompt and rated each unique idea in terms of how important it was and feasible it seemed to them. Participants generated 78 unique ideas, from which 9 key themes emerged (e.g., Building connections between researchers). Items rated highest in perceived importance and feasibility included providing seed grants for pilot projects, connecting researchers with common interests and networking opportunities. Implications of results are discussed. The Group Concept Mapping exercise enabled our project leadership to better understand stakeholder-perceived priorities and to act on ideas and aims most relevant to researchers in the state. This method is well suited to translational research enterprises beyond Rhode Island when a participatory evaluation stance is desired.

Highlights

  • Advance Clinical and Translational Research (Advance-CTR) serves as a central hub to support and educate clinical and translational researchers in Rhode Island

  • This paper describes our application of the Group Concept Mapping (GCM) methodology to inform the leadership of our CTR and our partner institutions about priorities and opportunities for enhancing clinical and translational research in our state, as perceived by the communities of researchers, clinicians, and institutional administrators served by AdvanceCTR

  • Key decisions made in our approach involved devising a suitable focus prompt, determining the duration of the idea generation period, and developing an itinerary for the retreat that included additional participatory activities to complement the individualized sorting and rating tasks, for which we provided 90 minutes’ time

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Summary

Introduction

Advance Clinical and Translational Research (Advance-CTR) serves as a central hub to support and educate clinical and translational researchers in Rhode Island. Conclusions: The Group Concept Mapping exercise enabled our project leadership to better understand stakeholder-perceived priorities and to act on ideas and aims most relevant to researchers in the state. This method is well suited to translational research enterprises beyond Rhode Island when a participatory evaluation stance is desired. Experts in medical and health policy recognized in the early 2000’s that despite advances in basic biomedical research, the movement of laboratory innovations to patient-relevant treatments and public health arenas was lacking This realization stimulated a variety of efforts, inside the National Institutes of Health (NIH), to identify and overcome barriers to the transfer of scientific knowledge in the health realm [1].

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