Improving the Care of Infants Identified through Cystic Fibrosis Newborn Screening

Abstract

On behalf of the Cystic Fibrosis Foundation, we are pleased to share the enclosed clinical practice guidelines for the care of infants identified through cystic fibrosis (CF) newborn screening (NBS). The widespread implementation of NBS for CF throughout the USA presents an incredible opportunity to improve health outcomes for this patient population. The evidence documenting the magnitude of the opportunity is growing.1,2 We are entering a new era in which the devastating symptomatic presentations of CF such as failure to thrive will become a thing of the past.