Abstract
An important type of research on informed consent involves empirically testing interventions designed to improve the consent process. Here we report on the experience of eight teams that conducted research involving interventions designed primarily to impact one of three categories: decision-making, knowledge, and the therapeutic misconception. Comments © The Hastings Center. Reprinted by Permission. This article originally appeared in IRB: Ethics and Human Research Special Supplement, Volume 25, Issue 5, September 2003, pages S11-S19. Publisher URL: http://www.thehastingscenter.org/publications/irb/irb.asp Author(s) Patricia Agre, Frances A. Campbell, Barbara D. Goldman, Nancy Kass, Maria L. Boccia, Laurence B. McCullough, Jon F. Merz, Suzanne M. Miller, Jim Mintz, Bruce Rapkin, Jeremy Sugarman, James Sorenson, and Donna Wirshing This journal article is available at ScholarlyCommons: http://repository.upenn.edu/bioethics_papers/9 Improving Informed Consent: The Medium Is Not the Message Patricia Agre; Frances A. Campbell; Barbara D. Goldman; Maria L. Boccia; Nancy Kass; Laurence B. McCullough; Jon F. Merz; Suzanne M. Miller; Jim Mintz; Bruce Rapkin; Jeremy Sugarman; James Sorenson; Donna Wirshing IRB: Ethics and Human Research, Vol. 25, No. 5, Supplement. (Sep. Oct., 2003), pp. S11-S19. Stable URL: http://links.jstor.org/sici?sici=0193-7758%28200309%2F10%2925%3A5%3CS11%3AIICTMI%3E2.0.CO%3B2-0 IRB: Ethics and Human Research is currently published by The Hastings Center. Your use of the JSTOR archive indicates your acceptance of JSTOR's Terms and Conditions of Use, available at http://www.jstor.org/about/terms.html. JSTOR's Terms and Conditions of Use provides, in part, that unless you have obtained prior permission, you may not download an entire issue of a journal or multiple copies of articles, and you may use content in the JSTOR archive only for your personal, non-commercial use. Please contact the publisher regarding any further use of this work. Publisher contact information may be obtained at http://www.jstor.org/journals/hastings.html. Each copy of any part of a JSTOR transmission must contain the same copyright notice that appears on the screen or printed page of such transmission. JSTOR is an independent not-for-profit organization dedicated to and preserving a digital archive of scholarly journals. For more information regarding JSTOR, please contact support@jstor.org. http://www.jstor.org Mon Mar 12 10:00:36 2007
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