Abstract

BackgroundPeople living with chronic kidney disease (CKD) require complex medical management and may be frequently hospitalized. Patient safety incidents during hospitalization can result in serious complications which may negatively affect health outcomes. There has been limited examination of how these patients perceive their own safety.ObjectivesThis study compared the safety perceptions of patients hospitalized with CKD using two approaches: (a) the Patient Measure of Safety (PMOS) questionnaire and (b) qualitative interviews. The study objectives were to: (1) assess concordance between qualitative and quantitative data on safety perceptions and (2) better understand safety as perceived by study participants.MethodsA cross-sectional convergent mixed methods design was used. Integration at the reporting level occurred by weaving together patient narratives and survey domains through the use of a joint display. Interview data were merged with results of the PMOS on a case-by-case basis for analysis to assess for concordance or discordance between these approaches to safety data collection.ResultsOf the 30 inpatients with CKD, almost one quarter (23.3 %) of participants reported low levels of perceived safety in hospitals. Four major themes emerged from the interviews: receiving safe care; expecting to be taken care of; expecting to be cared for; and reporting safety concerns. Suboptimal communication, delays in care and concerns about technical aspects of care were common to both forms of data collection. Concordance was noted between qualitative and quantitative data with respect to communication/teamwork, respect and dignity, staff roles, and ward type/lay-out. While interviews allowed for participants to share specific concerns related to safety about quality of interpersonal interactions, use of the questionnaire alone did not capture this concern.ConclusionsSafety issues are a concern for in-patients with CKD. Both quantitative and qualitative approaches provided important and complementary insights into these issues. Narratives were mostly concordant with questionnaire scores. Findings from this mixed methods study suggest that communication, interpersonal interactions, and delays in care were more concerning for participants than technical aspects of care. Eliciting the concerns of people with CKD in a systematic fashion, either through interviews or a survey, ensures that hospital safety improvement efforts focus on issues important to patients.

Highlights

  • People living with chronic kidney disease (CKD) require complex medical management and may be frequently hospitalized

  • Narratives were mostly concordant with questionnaire scores. Findings from this mixed methods study suggest that communication, interpersonal interactions, and delays in care were more concerning for participants than technical aspects of care

  • In a population of pre-dialysis patients with CKD in the Safe Kidney Care (SKC) Cohort Study, Ginsberg et al [4] reported that 70 % experienced at least one adverse safety incident or actionable safety finding, while over one-third had two or more

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Summary

Introduction

People living with chronic kidney disease (CKD) require complex medical management and may be frequently hospitalized. In Canada, the number of people on chronic dialysis nearly doubled between 2000 and 2019 [2] The complexity of this disease and its medical management predispose individuals to further complications of the cardiovascular and renal systems [3, 4]. Since hospitalization rates are higher for patients with kidney disease [12], increasing awareness and taking measures to avoid safety incidents are key to protecting this patient population from harms. Their experiences with safety are an important contribution to the patient safety literature

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