Abstract
Primary immunodeficiency diseases (PIDs) represent a typical group of rare diseases with high mortality and disability with regard to long-term outcome.Saving life and improving quality of life of the patients with PID remain to be the responsibility of the stakeholders from all aspects of the society.As the central player in the long run of PID campaign, pediatric immunologists should play a critical role in providing key epidemiological data in favor of political decision-making and social resource distribution. Key words: Primary immunodeficiency diseases; Stakeholder; Intravenous immunoglobulin; Newborn scree-ning; Hematopoitic stem cell transplantation
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