Implementation of an Advance Care Planning Inventory and Its Possible Effect on Quality of Dying: A Nationwide Cross-Sectional Study in Group Homes for Persons with Dementia in Japan.

Seira Takada,Masaomi Ikeda,Yasuko Ogata,Yoshie Yumoto

doi:10.3390/healthcare10010062

Abstract

This study aimed to develop an inventory for advance care planning implementation for persons with dementia in group homes and to examine the association between inventory implementation and residents’ quality of dying. A nationwide cross-sectional study was conducted via questionnaires mailed from 2000 group homes in Japan, selected through stratified random sampling. Participants were managers and care planners who had provided end-of-life care for recently deceased residents. The newly developed inventory was used to assess advance care planning implementation for persons with dementia, and the Quality of Dying in Long-term Care Scale was used to evaluate quality of dying. The valid response rate was 28.5% (n = 569). The factor structure of the newly developed Advance Care Planning Practice Inventory and the association between its implementation and quality of dying were verified using factor analysis and internal consistency, and logistic regression, respectively. The composite score and the factor score of the newly developed inventory were significantly associated with quality of dying (p < 0.05). The implementation of advance care planning improves the quality of dying. These findings can be used in development of educational programs, as well as research on advance care planning for care providers.

Highlights

The number of persons with dementia (PWD) is expected to increase worldwide as the population ages, and Japan is no exception [1,2]
Group homes for PWD are one such type of residence—a community-based service covered by long-term care insurance that started in Japan in
ACP, the advance care planning; ACP Practice Inventory (ACP-PI), We considered the topics of discussionNote: regarding final stage of Mr./Ms

Summary

Introduction

The number of persons with dementia (PWD) is expected to increase worldwide as the population ages, and Japan is no exception [1,2]. PWD find it difficult to express their wishes and live independently; some move into nursing and aged care facilities. Group homes for PWD are one such type of residence—a community-based service covered by long-term care insurance that started in Japan in. Care is provided primarily by caregivers, and group homes should not be staffed with medical staff [4]. More than 60% of residents’ family members wish for the residents to spend their final days in the group home, with which they are familiar [6]; this is expected to further promote end-of-life care.

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